Insightful 2020 Educational Series is a an informal and informative gathering of patients and stakeholders that consists of stories told by patients with MacD, and “arm chair” conversations with experts about investing in the patient and caregiver community.

When sight disappears, so does a person’s connection to the world. TSSF is all about helping people who can’t see. Every single day they live with this blinding disease and it changes their lives forever. We hear over and over again that support and help from TSSF is transformational.
Why? Because AMD is ALL we do. 

That’s why we believe in:

Education for patients and caregivers on how to live more independently with MacD.

Advocacy to amplify the need for national attention given to the disease.

Research to discover new treatments and a cure.

The SupportSight Foundation (TSSF) is committed to carrying forward the knowledge, experience, research, and patient education assets started by the Macula Vision Research Foundation. We describe TSSF as a hybrid. One component is our established past, the other is our responsibility to lead the way in macular degeneration (MacD) patient education and advocacy. Millions of people who suffer from MacD desperately need credible accurate information, and disease education and support.

 

EDUCATION

Insightful 2020 Educational Series is a an informal and informative gathering of patients and stakeholders that consists of stories told by patients with MacD, and “arm chair” conversations with experts about investing in the patient and caregiver community.

SupportSight (SS) is our signature patient education and outreach program conceived to link patients, caregivers, and families affected by macular degeneration with the most up-to-date information. We offer free, fully accessible learning opportunities on living with MacD, new treatments, and research. Embedded in our program design are proven practical strategies to help improve their quality of life with vision loss.

SupportSight Seminars happen across the country. The public seminars are free of charge and feature low vision experts, healthcare professionals, and motivational/inspirational speakers to engage the audience in an interactive setting.

Mini Education Sessions are presented in a condensed format. We partner with local area retirement communities, low vision providers and community-based agencies making it cost-effective and convenient to connect with people where they are and raise awareness.

SupportSightNEWS  is our seasonal newsletter with national reach. A digital version is available online at supportsight. org. It is designed to be reader-friendly for those with impaired vision. The content is a reliable source for the AMD community and their caregivers.

SupportSight Resources include our Patient/Caregiver Info Hotline, outreach activities, retirement community partnerships, educational materials and online resources.

 

ADVOCACY

Living with AMD in a COVID-19 World We continue to modify our educational series about Living with AMD in a COVID-19 World.

The Low Vision Education Key Collaboratives Program aims to raise public awareness about low vision which is a consequence of MacD and other eye diseases millions of people experience no matter what age.

Mymacdlife.org is a companion website which features an interactive collection of personal stories. Our goal is to create a unique online community through powerful anecdotes that knit together a tapestry about living with this devastating, blinding disease. The website will be auditory and low vision accessible. Creation will begin in Spring 2020.

As of 2020, approximately 20 million Americans are estimated to have macular degeneration and other retina-related debilitating diseases. ~ National Institutes of Health (NIH)

Thanks to our generous SupportSight Foundation sponsors:

And Anonymous donor